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Reply to "Recommendations for best surgeon to repair jpouch and rectal/vaginal fistula"

I also have an RV fistula. It's been 8 years now, and my pouch is 19 years old. The only thing different about me is that I don't have, and never have had a seton. I'm not even sure why my surgeon never recommended one. In any case, me and my fistula get along as well as we can. It's not fun, or anything like that, but it only really bothers me when I have inflammation from cuffitis. 

 

Like n/a, my surgeon believes most attempts at a repair are unsuccessful, and because my pouch is otherwise perfect I am choosing to live with this Rv fistula for now.  In my 9 years I've never had it close up and form (or re-form) an abscess, so I guess that's why the seton conversation never came up.

 

Hope you get some answers and relief soon.

CJ

Last edited by CJB
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