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Reply to "Questions questions questions!"

GB2014 posted:

I've only had my pouch for half a year so it's still early days but at the moment I go 5-6 times every 24h (only once during the night), I don't take any drugs, I can eat anything I want, I have almost zero butt burn, I have not had a single leak and I have no issues at all with "urgency" i.e. running to the loo. You will be left with large scars from the operations so even with a pouch, your stomach will not be super-model flawless any more but it's not so bad, they are fading.

 

The bag was fine - but the Pouch is definitely better!

 

My advice on whether to have a pouch or not boils down to basically one consideration - how are your sphincter muscles? If they are good, try the pouch. However if you know they are "problematic" then personally I wouldn't want to live with the constant stress/worry of leakage/accidents during the day (but most especially at night when sleeping) and I'd stick with the bag. But that's just how I feel.

 

I see you're in England. I had my op at Swansea and the surgeon there was excellent. If you are not 100% happy with your own surgeon I would definitely recommend transferring there - but you'd probably have to wait or pay to go private :-(

To be honest since my UC has been under control I'm lucky if I open my bowels once a week, as far as I know my sphincter muscles are fine! I've researched my surgeon online and he seems to be the best in the field and specialises in colorectal surgery along side UC and crohns. I can deal with going to the toilet often as long as it's not like I used to be, I was scared to leave the house and if I did I needed to locate every single toilet before I could relax! Xx

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