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Just like to add there might be leakage issues when you first get your ileostomy as the stoma will begin to shrink in size.  I use a moldable wafer, which is simply the part that goes over the stoma, and because it is moldable you can open it up and it will simply mold itself to the size of your stoma with a snug fit and not damage the stoma.  There are also wafers that you can cut to the exact size of your stoma and this requires that you measure the stoma.  I'm sure that your nurse will explain all of this to you.

Also, there have been many advancements in the products available to those with ileostomies in the last 20 years.  I've had mine the last couple years and never had any kind of yeast infection, or any skin irritation that I couldn't simply treat with some powder and skin protective.  If you do get a leak it will feel as if the skin around the stoma feels warm, itchy (like really itchy), or stinging feeling.  If you feel any of that you should get ready to change the bag.  You will have a window time of about 30 to 40 minutes 2 hours after your last meal when the stoma is less active.  What I do is take half a tablet of imodium and wait 30 minutes for things to slow down.

There is also an adhesive removal spray, specifically for taking off the bag.  I use it so that I don't have to pull off the dressing.  It helps protect the skin, otherwise its kind of like giving yourself a wax every time you change it, although I've never given myself a wax, lol.  That was something my nurse told me anyway.

Whatever you decide there will be a period of adjustment.  You have to be ready for that.  And you need to look at it as a new chapter in your life.  And I know you mentioned that you don't feel sick now but you need to think of how lucky you are that they are able to detect this issue early.  This time in history that we live in is pretty remarkable when you think about all the medical advancements and ability to extent our lives.  We are living on borrowed time.  Live everyday to the fullest.  And enjoy this time before your surgery.  Go travel with family and friends if you can.

This is a good place to share your thoughts and get some support but if you do feel down in the dumps, don't be hesitant to ask your doctor to speak with a professional.  It took me many years of denial and thinking I would be able to get back to where I was before I went and talked with someone.  And I'm not on medication, I simply go every other month to talk with someone who offers some professional advice and it has helped me a lot to simply adjust and be honest about my situation.

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