My responses:
Do you still get butt burn?
Not since one year post takedown. My body adjusted.
Do you still use cream each day daily?
No, see prior response.
Are the toilet trips lengthy? (Amount of time spent in the toilet)
No. I only have incomplete evacuation when pouchitis is not under control.
Are you able to eat all foods?
Yes, but I have eliminated carbs and sugars due to SIBO and the potential to exacerbate chronic inflammation, and red wine gives me diarrhea.
Do you have bad days and if so is it just increased visits to the throne or is there pain /urgency also?
Bad days only when I am off antibiotics for longer than 7-8 days and then they become very bad and the urgency progressively increases. So I don't go off the antibiotics. With antibiotics I only occasionally have an odd bad day and when that happens, I rotate/adjust dosages/take Pepto Bismol and I then clear the flare. This same process for 20 years now.