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Reply to "Question for successful pouchers"

I've had my pouch 22 years and have gone through some pretty bad times with it (pouchitis, cuffitis, fistula, sepsis), but things have settled and doing much better in the last 4-5 years. 

 

Do you still get butt burn?

BB, not so bad at the beginning, but the last 5-10 years, yeah, it's a fact of life for me anymore.  I'm pretty sure it's due to RV fistula, however, I do notice worsening when eating hot, spicy foods (my fave, naturally). 

 

Do you still use cream each day daily?

Yes indeed, pretty much after each BM.  I've tried them all - A&D Ointment (Target's brand) is my current favorite.  I also use a Cleveland Clinic butt protection paste ($$$$$) at night only.  I was a big fan of calmoseptine, but I've been wondering whether I've started having some kind of reaction to it, as the burn just doesn't respond to it anymore, and sometimes gets worse with it.  I'm considering making my own paste - there are a number of "recipes" on the web.

 

Toilet trips lengthy?  No - in and out in a matter of minutes, unless things are feeling "stuck", then it's in and out numerous times.  This doesn't happen too often anymore.

 

Able to eat all foods? 

I avoid raw garlic/onions - the absolute worst food for me due to gas production.  I also have sadly started avoiding spicy foods.  I tend to avoid extremely fibrousy foods such as mushrooms.  I feel that I can eat almost anything else, as long as I eat small portions of possible problem foods, such as raw vegees and dried fruit, and chew everything forever.

 

My "bad days" involve increased visits to the toilet, but I never have pain (outside of BB).  Urgency is very rare.  I do take 2 immodium at bedtime - very effective for me.

 

Final suggestion for those of you on the fence regarding bidets - do get one!  You can find cheap, easy-to-install bidets on Amazon that are around $50. 

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