@Scott F posted:Can you arrange a televisit with a doctor on your care team? I’m reluctant to encourage you to take nearly random medications to try to get some action out of your megapouch. I also can’t tell if the retained pouch contents are hard or soft. Have you had any experience with pouch irrigation, where fluid is pushed in, and then manually drained? Perhaps that’s what you meany by trying the Foley. You might also need to experiment with different positions, in case your megapouch gets itself blocked up in some orientations, a bit like a prolapse. A bathtub might give you more positional freedom. Good luck!
No worries, Scott. I am really just thinking out loud at this point. I have a phone appt with my GP in 15 mins and my dad is on standby to drive me to the hospital where my j-pouch surgeon works if needed.
Pouch contents are soft. Yes, I meant irrigation with the Foley. I will try it again shortly. I had BPPV (vertigo) earlier this week and am still a bit wobbly.
To top it all off, our power just went off. It’s not a hot day, luckily, but my modem is off and I don’t want to run down my phone.