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Reply to "Progress after J-Pouch surgery"

@Former Member posted:

Yeah, I know what it’s like not to get a good nights sleep; close to 10 years with the ileostomy, I was having to change my colostomy bag, sometimes twice during the night, otherwise it would inflate like an airbag and burst open if I happen to lay on it.

Since takedown, during, maybe the first 12 months I had a few night time BM; it’s certainly not an issue now though

My BMs vary from day to day, normally hours and hours between BMs, although my frequency tends to increase during the evening.

Yeah, i cannot believe your ileostomy was filling up every couple of hours, I heard that before from someone else. Loperamide did not even help during the 10 years???

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