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Reply to "Productive cough"

Hi Terry, yes. I have these EXACT same symptoms and been through every test imaginable. Sadly there is a strong link between UC and lung complications. You can google around and find reputable studies. I’m finally with a great pulmonologist that has dozens of UC patients with this exact same lung issue. It’s basically endobronchial UC. UC in the lungs. After colectomy the immune system can attack the lungs. Lungs and colon are very similar tissue and share the same embryonic origins. My bronchoscopy showed lung inflammation that was identical to my colonic inflammation pre jpouch. I take a 2x daily steroid inhaler called Qvar that has mostly put it into remission. Viral infections and bad pollution are a trigger for me. Right now my inhaler isn’t working as well but it still drastically decreases the amount of mucus I produce and I hardly cough during the day, just ran 3 miles yesterday. My lung function tests have remained good. Winter is the worst. In the Spring and summer I’m often in total lung remission. I’ve dealt with this for maybe 4 years now. You need find a doc that understands the lung/UC link because steroid inhalers are not standard treatment for bronchiectasis, they hardly work for that, however inhaled steroids are the established line of treatment for the issues we are facing. You may need to try a few inhalers before getting to one that works, but they work slowly. I didn’t see improvement till about 4-6 weeks of being on Qvar which is normal. I hope this helps.

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