Just to update I've had terrible joint pain now for 15 or so years , hips lower back & now hands last few years. Decided it was just luck of the draw & middle age.
Joint pain got to a stage a few years back where what sleep i was getting was hugely comprimised with pain. So i was referred to a Rheumatologist after various scans etc which confirmed Sacriolitis grade 4 - Ankylosing spondiylitis-& everything else ending in itis. I was put on humira well 3 days after first injection never felt anymore pain or flareups ever since . I t has now been 18 months , reviews are not good on this drug -but for me it works - however i stretch my injections out. Inflamation markers in all blood tests still massive. For all i have gone through i am eternally greatful to be able to sit on a toilet rather than kneel.
Another thing that may help some of you new J Pouchers- Butt burn is easy after passing a BM wipe your Butt with a warm watered facewasher. No more burn or at least bearable.
Anyhow will catch you all on the roundabout.