Skip to main content

Reply to "Primary sclerosing cholangitis"

Ok Beth spill!  I need to know everything you know!  I'm a wreck.  I spent the 

sat 24 hours crying my eyes out because I think my son is going to die.  How many attacks have you had?  And what denotes an attack?  Can I take him back to Robert Wood if he is having an attack or get him into NYC, which for me is never easy as I don't drive on the turnpike or bridges.  Long story, don't ask!  Why meds do you take.  Eighteen years gives me hope.  This kid is only 24 and has been suffering his entire life.  I'm not sure how much more any of us can take.  I think I have aged 20 years in the last three weeks.

 

thanks for the opinion about Cornell.  Good to hear.  I just don't trust anything anymore.  This is too overwhelming right now. I wish it would just go away!

 

thank you,

dianne

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×