Thanks for asking Dianne. I'm okay but am waiting to schedule a pouchoscope with my GI at Mayo's as the balloon dilation performed in Feb. didn't work. My GI is concerned I might need a surgical dilation under anesthesia. Since I know what the problem is I'm not freaking out like I was in Feb.! It is what it is
Back to my friend. She fired her prior doctors as they kept telling her all she needed to do was loose weight. This is why 2nd opinions are so important. The University of Chicago is where are of her specialists are.
PSC is a nasty diagnosis. You are right and giving up is not an alternative! I hope you are taking care of you too.
Take care,
Paulette