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Reply to "Primary sclerosing cholangitis"

First off,Chill !  PSC like any disease affects each of us differently. I've had it for 16 years. Been listed as a pre transplant candidate for over 10 years. Too many details to share here,but it does NOT affect all your organs. It is an inflammitory disease of the biliary ducts. Cholangistis for me is body aches in the bone from the waist down, 10 times worse than the flu, followed by jackhammer chills even in July. Then massive fever, sometimes to the point of passing out. When that happens,I know that I've got a dominant stricture that can only be resolved by ERCP dilation and stent therapy.Then it's to the ER.  PSC Partners for a cure is a good website for information.

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