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Reply to "Pouchoscopy"

I echo Rachel's thoughts.

 

In addition, if you are concerned about the prep, call the office back and get clarification. Be sure to have the nurse ASK the doctor to review the prep specifically for you, explaining that you have NO colon. When the doctor schedules these things, often he does not specify that you are different, so the staff hands out the standard prep instructions. So, don't let them insist that "this is what WE do and YOU must do it." 

 

Whether or not you still have some rectal cuff is not a given. A surgeon might say the entire colon is removed and not point out that a tiny rim of rectal tissue is left behind for technical reasons. Most j-pouches do have some cuff. But, even those that do not, still need the periodic scoping and biopsies, just because of the IBD history.

 

It would be nice if there was consistency on treatment and monitoring protocols, but philosophies are varied and some doctors are slower to change their ways than others. Plus, there are those who just don't have much, if any, experience with j-pouches. I would hope that those docs would be eager to learn from their patients, but sadly that is not always the case. Most of us have had our share of cold fish or disinterested doctors. You just have leave them and move on. For me, I need doctors I can talk to and who listen to me.

 

Jan

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