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Reply to "Pouchitis with Possible Crohn's Diagnosis"

OK, this is getting out of hand.

I can see how CT was misunderstood. Not everyone is a psych therapist, so we can expect folks to make assumptions about others from time to time. Sometimes they are right. Sometimes they are way off base.  But, just because someone takes a matter-of-fact approach that may seem dismissive to some, it does not mean that is the intent or there is any sort of bullying going on. 

So, let’s dial down the flaming, stay on topic, and try to ignore and/or forgive if someone rubs you the wrong way. 

In regard to the original post: I get it. It is frustrating to feel like you have been lied to by your medical providers. Shame on them for making it all seem so black and white. But, the reality is that there is a whole lot of gray area on IBD diagnoses and regardless of what you were once told, things can and do change over time.

I am one who is has been on biologics for about 15 years post op. First for arthritis, now chronic pouchitis. Do I like it? No, but I accept it. If I don’t, it could eat me alive. I think that was the point CT was getting at. You feel how you feel, but it is possible wrap your mind around it and free yourself from the anger and fear. Hopefully, that does not mean it is all about me, but that there is more than one way to define success.

Jan

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