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Reply to "Pouchitis with Possible Crohn's Diagnosis"

Still Standing posted:

When I had surgery, my original diagnosis was UC, but has now been re-categorized to crohns. UC and crohns are just labels.  They don't define who we are.  Treatment of the inflammation in either case is what matters.  

In the past few years my surgeon helped me find a really good GI who has been a tremendous help in finding treatments for me, which are helping to heal the chronic inflammation and allowing me to sleep at night. (Didn't do that so well for years after the j pouch was made - while raising toddlers too.)

Anyway, don't worry about the labels.  Keep working with your doctor to find a course of treatment that works for you.  It may take some trial and error to get it right, but the fight is so worth it.

Hope this helps

 

Thank you for your reply! My pouch has allowed me to have two healthy pregnancies, without being on medication, which I’m extremely grateful for. I’ve recently switched doctors so I am encouraged no matter what I’ll get the right treatment. Just trying to mentally process everything. 

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