Skip to main content

Reply to "Pouchitis with possible Chron's"

I am sorta scared to reply because I have been in this war a long time and it sounds like you are where I was right before I had my colon removed! I was diagnosed with UC and after 10 years, my scopes showed wall to wall polips! No cancer! They told me that keeping my colon after 10 years made my risk for cancer go really high! Last time I got really sick was being highly allergic to Pentasa, so I pleaded for my colon removal! Then I found I had chronic pouchitis! They said "{Opps, we have been wrong and you must have Chrohn's} I have constantly had pouchitis and went from Entyvio to Stelara to Remicade! I have never been blessed with remission nor with anything other but water stools! I wish there was an easy fix all for all of us walking in this daily hell, but few stumble across it! God gives us grace as we look to and trust Him! This gives us empathy for others who live with a life always in the war zone! No place to hide! We just get back up, live thankful, and put one step forward!

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×