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Reply to "Pouchitis with non-typical symptoms"

I am also one without the usual symptoms. Mine are very subtle comparatively.  I lose weight. I can't fully empty my pouch so up more at night to do so. I do not experience the pain nor cramping or discomfort many on here have reported. I also get very dehydrated and have low energy. This my 3rd and worst round of pouchitis after 33 years post take down. I'm working with doctors in Australia who do not see many if anyone with a pouch here so very inexperienced with pouchitis or how to treat. They also do not want to prescribe cipro because it's held as one they want to use for super bugs if needed so accessing it is difficult but I know it works. I've taken flagyl 400mg x 3 day but the side effects are really bad so I've cut it down to 1/2 under Drs advice but at that level it isn't working so I'm going to see if I can switch perhaps try Xifaxan as I read on hear thst some have said it be good and less side effects than Flagyl...here's hoping.

Last edited by Indiana
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