I'm sure this has been asked many times but I'm having a hard time finding some answers. How would I know if I have pouchitis or cuffitis? I will be calling my surgeon and hopefully getting some answers but I'm pretty anxious about it.
I am 5 weeks post stage 2 surgery (3 stages for me) and basically feel like I'm having a UC flare again. I have increasingly been having more rectal discharge which is mostly mucous but also mixed with some stool. The past 2 nights, I've had night leakage which I have never had before and a lot of gas in my bag despite not eating any trigger foods. There is definitely pain but it seems localized to the little bit of my rectum that is left and often one particular area that seems to bother me more. Sitting isn't particularly comfortable and I had a lot of pain when I attempted to go for a walk yesterday. I was very sick before my 1st surgery and then dealt with a lot of bleeding and urgency between the next surgery while I still had the rectal stump. There isn't any blood any more but the discharge just doesn't seem all that healthy if you know what I mean. I have also started to have a little mild cramping as of tonight but honestly, maybe that's in my head.
I'm just so frustrated, so sad that I haven't even had my take down yet and am so worried that chronic pouchitis will be in my future. Any words of wisdom would be greatly appreciated. Thank you all so much.
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