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Reply to "pouch-vaginal fistula - how to repair?"

About 2 months after my first takedown, I developed symptoms of an RV fistula. After three exams revealed nothing, my surgeon did an exam under anesthesia and found it, along with another fistula that was next to my anus and needed a seton placed in it. I was temporarily diverted to a loop ileo again and started six months of Remicade treatments (I had originally been diagnosed with UC, but they thought at this point that it was Crohn's). After the Remicade treatments, most of it had healed up, but I did need a small surgical repair using the gracilis muscle to completely heal it. I am happy to say that it worked for me; I had my second takedown about three months after the repair and have been on Humira for maintenance ever since with no fistula recurrence. The seton was very painful given where it was located, and for months sitz baths were my only comfort. Throughout all that drama, I did have to abstain from sex for a little over a year, which wasn't hard considering I didn't want anyone touching me with a 10 foot pole at that point. So sorry you're going through this, but I hope the surgical repair is successful for you if that's the route you choose to go with.
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