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Reply to "pouch-vaginal fistula - how to repair?"

Hi
Ive had a recto-vaginal/ perineal fistula for 3 years since I had my j pouch removed, my then surgeon mentioned once he wondered if it had been caused during the surgery , after 10+ surgeries to try and close things , even a wound vac drain, nothing worked I was referred to a plastic surgeon who wasto work along side a colorectal surgeon. My first surgery with the two surgeons (both new surgeons to me) The colorectal guys just took the tract out and closed the deficit, I knew instantly that it hadn't worked , things were complicated by an abscess in my pre sacral area, which the colo rectal surgeon didnt deal with so of course 4 weeks later I was back in hospital for the procedure the plastic surgeons had planned to do in the first place 'lotus petal flap repair' I was still having problems after that so a few months later the did an eua and mri found the abscess had grown and was 15cm x 22cm, the pain was awful and the discharge vaginally , April 30th I had my 2nd lotus petal flap repair, my surgeons said they were more agressive this time, as they wanted to make sure they got everything all the abscess and the fistula tract, I am now nearly 7 weeks post op and have seen my surgeon regularly since, as I still have vaginal drainage and pain, I have an open wound in my right groin as the wound re opened which isnt unusual for me ! The last one in my left groin was alot smaller and took 5 months to heal so I;m not sure how long this one will take ! My surgeon is not sure what is causing the dischgarge and they keep swabbing it bit it always comes back clear . They have put me on a 2 week course of antibiotics I think as a precautionery measure as my gp put me on a course as the discharge had got thicker and more pus like! Now its just very watery, and I have been supplied with incontinence pads as its constantly draining. After seeing my surgeon on Monday he is now wondering if it is a seroma, I am awaiting an mri scan to see if it is and if so if it can be drained ! My original diagnosis was crohns but after colon removal they said more suggestive of Uc, but my new(ish) colorectal surgeon says he thinks my original dx was correct bit will not place me on meds or do tests as he said it would effect my healing from these big ops ! I suffer from lots of abdominal pain and pass blood from my stoma on ocassions, so i'm now on the colorectal guys waiting list but I'm going to ring them as things are getting worse ! In the past anything going on has always been put down to the fistula/ abscess etc. I have told the plastics I cannot go through that surgery again as this last one has by far been the worse of all my surgeries, I think if they find that the fistula is back then I may have to live with it as they have said there isnt anymore they can do ! I guess time will tell and my mri scan ! Anybody dealing with this totally has my sympathy ! Good luck to you all !!
Take care
Shelly xx
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