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Reply to "pouch removal planned this week - freaked out"

Hi EP,

I am so very sorry...this must be so hard for you. 

I would make a list of questions and ask your consultant all of them and then note down the responses...this is not a little surgery and you need time to comprehend the change that this is going to cause you.

Have you heard about the k pouch? What hospital are you in? (I am supposing that you are in England)...they are doing them there and can occasionally be done using the same pouch without having to build a new one...it could be an opiton for you. You would still have an abdominal stoma but you wouldn't have an outside bag.

It must be done by an experienced surgeon though...no to be tried by someone who doesn't know what they are doing.

If they only have to remove 1 ovary, why would that put you into menopause? If the other one is still intact and functional then you should still have your period...have you had a consult with a gyn? It would be important to talk to one before the surgery...

Stand your ground and ask a lot of questions, make sure, if they must give you an outside bag to discuss the position of the stoma and what is best for You...and talk to your surgeon about a pouch redo...it is possible in some cases but not all...and make sure that he understands all of your worries and concerns.

Good luck, my prayers are with you

Sharon

 

 

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