Dear all, thank you so much for taking the time to share your thoughts and experience. Been a roller coaster few days!!
My gastro consultant and gi surgeon have been amazing and discussed my situation with Gynae surgeon who would do any surgery. Their preferred and safest option is pouch out but they have agreed for me to have less major surgery with end ileo with a small risk of sepsis re-occurring from pouch fistula. Although small there could be hope of a redo pouch in the future - right now hanging on to that hope is important for me. They have also agreed to monitor my remaining ovary / cyst and hold off surgery at the moment as no longer doing big gi surgery.
Would seem that being brave enough to express my feelings made them stop and rethink and offer other options even though not their preferred choice. The team really listened and offered treatment which met physical and psychological needs. Very grateful for this.
Surgery much smaller so recovery anticipated quicker and hopefully only a week post op in hospital. Thanks again for support - much appreciated.