Hi, I was admitted to hospital as an emergency with sepsis and developed septic shock due to a fistula in J pouch created they think by bad pouchitis. Had 4 weeks IV antibiotics. They want to remove pouch and give me permanent ileostomy this week. What is it like having pouch removed? What is recovery like? How did you cope with permanent stoma? Has anyone had pouch redo? I've asked to discuss this tomorrow with consultant - no idea if this is possible but would be keen to hear of anyones experience. They are also looking to take remaining ovary with 5cm endometrial cysts at same time which would put me into surgical menopause. I dont want this but they are keen to do minimal surgery as so tricky / lots adhesions from previous surgeries. Feeling very scared and freaked out - would be grateful to hear from anyone.
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