Just an update - I had the j-pouch removal surgery back on the 29th of September. It was pretty tough. The removal went well but there was internal bleeding and they had to go back in on the 2nd day and find the source and then restitch and restaple. There was also problems with the epidural, by the 4th or 5th day it slipped out and they decided to take it out. They increased my Fentinal to compensate which started to give me side effects, hallucinations and anxiety, had a nervous break down. The only other pain med they could give me was demoral, because I've become allergic to everything else. On the 6th day they found there was an abscess in the spot where the pouch was, I had to have a drain put in. After a 12day stay in the hospital I was finally discharged.
I'm home now, feeling better, somewhat, but still have the drain in. The infection they found was a strep infection. I was on a 12 day course of penicillin but there was still stuff draining after I finished the meds. And there is still stuff draining today. Also, I've been having pain on my left side, it feels like a sharp stabbing pain if I press on it, and sometimes after I eat I feel it more, this has been going on for the past week. I mentioned all this to my surgeon and he scheduled an MRI tomorrow. I'm not on any pain meds, really for the past week I haven't taken anything other than tylenol, and really I've stopped that since Friday. Wondering if the pain is just my body healing...
I did have night sweats pretty much every night since the surgery, until last week. Been finally able to sleep without sweating through my clothes.
Energy is also getting better.
Right now the main thing is this infection, hoping the MRI shows that its cleared and I can have the drain taken out. Wondering if the pain on the left side is associated with the infection, maybe effecting the spleen or pancreas... the output from the ostomy has changed somewhat, theres a strange odor, almost a non-odor, kind of mineral smelling, like freshly pealed raw potatoes, not iron-y like blood but mineral-y like earthy... wondering if my pancreas is producing to much bile or the infection is somehow affecting it. Hope to get answers on Wednesday.
Last thing, they found the camera pill, intact. I'll post a photo of it soon.