I spoke with my surgeon today, after 8 weeks of progressive drainage from the pouch, I asked him what my options are. I currently have an ileostomy and also jpouch. My pouch is very distended and chronically inflamed. There is also a bottle neck area of GI just above the pouch, and also a camera pill that has been rattling inside since 2009, that my current surgeon has tried to locate with scope but unable.
My current issue is the chronic drainage from the pouch that has been as bad, well almost as bad as when I had pouchitis. I'm currently on cipro/flagyl and it is working butI feel this is a chronic issue that will return, just like previous cases of pouchitis.
I'm so tired of being sick.
I'm seriously considering removal of the pouch and my surgeon agrees that that would be something I would have to face down the line regardless.
My question is who on here has had their pouch taken out? And how did the surgery go? Did anyone have a distended pouch or excessive scar tissue? How long did it take to heal and return to normal everyday life?
Any insights would be appreciated.