I also saw Dr. Dietz and really liked him, just not the idea of having K-pouch. From my understanding you use way more bowel this way and was very concerned with that. I already don't have a lg. intestine and not a complete sm. intestine either.
Never in a million years that i thought I would have pouch failure. I did go and see Dr. Remzi in NYC. Very nice and helpful. he told me my pouch was a mechanical problem and it had twisted and was very elongated. I was in shock to say the least, but was great to finally figure out what was wrong with the pouch
Currently, I am (trying to wait) for the Pandemic to get under control. Although I'm not 100% sure what to do just thinking about another surgery gives me the chills, I'm not sure if my body can handle 2 more to get another pouch made but then again, i can't imagine the rest of my life with this external pouch either! That's my problem! Also still have not been given a firm diagnosis is it colitis or the big C! Dr . Dietz told me not to worry if it is C , he explained that there are many people who have the disease and are treated with biologics and for me didn't do much.
Well if anyone has any advice I would certainly appreciate it.
LJK