Reply to "Pouch Endoscopy Results?"

CT and Scott, do you/have you had low B12/required injections? If so, did this resolve with your current course of treatment?

Small update....the path report supports the endoscopy exam. Pouch cryptic distortion and ulcer. This is unchanged from a year ago. It does seem there's a trend in improvement in biopsies; no inflammation in the transition zone. Last year I was also told there is less inflammation in the pouch, though there is still inflammation and ulceration after antibiotic courses.

Is cryptic distortion just another word for inflammation? Prior path results use one term or the other so I am unclear if there is a difference.

I also see, after an indication last year that this may be Crohns, then indeterminate IBD (possible change from UC to Crohns), all things are back to calling it pouchitis. I know CT's argument and get it loud and clear, but I'm quite ok if it is not Crohns given how it can manifest.

I have an appointment in a few weeks to decide what's next. 

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