Reply to "Pouch Endoscopy Results?"

The answer to the question in your last post is not a simple yes or no. There is a certain level of inflammation that is objectively concerning. In 2012, after a 2 year stretch of poor eating and my weight ballooning to over 200 pounds, my then GI told me he didn’t like what he saw on scope and recommended biological drugs. I decided to clean up my diet and lose weight and the next couple of scopes looked good. He shared the pics with me and you could see it clear as day. In the 2012 scope, My J Pouch and the inlet looked like a horror show and was seriously strictured.

In 2015 I regressed, my new GI again recommended biological drugs and I agreed.

My J Pouch is now mostly inflammation free except for the cuff and the Pouch inlet- historically my 2 worst areas. There is also some inflammation in the neoterminal ileum, mostly from backwash stool.

Do you ask your Doctor for the scope pics? I have seen them for the last 10 years. They don’t lie. You can see inflammation and how severe or scarce it is. My last scope showed scattered ulcerations but nothing of real concern as compared to the past scopes. The only issue was a large inflammatory polyp (benign) which will likely be removed next scope.

Scopes show a pattern and progression from year to year. I would strongly suggest you review your scope pics and reports with your Doctors. If you have just discovered it on the last scope, treat and wait to the next one and re-assess. I can tell you that you will see a story on the scopes pics and reports. It’s clear when you look at them whether you are going in the wrong direction, getting better or staying at baseline. I am at my base line now for 3 years.

Last edited by CTBarrister
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