A little update. I had the first infusion and it went well, and so did my trip. Greetings from Hamburg y’all .
I think Remicade works fine for my pouchitis. I think my symptoms have improved - two days in. The nurse told me most people show the biggest improvement right after infusion no 2.
I’m beginning to feel a little optimistic for the first time in a long time. Thus far my symptoms have worsen very slowly over the course of 5 years but I’d like to think that remicade put me on a new course.
i have question regarding fistulas. Anyone had them? My year long battle with anal itching was thought to be due to a fistula my surgeon noticed on the MRI. Unfortunately neither my surgeon nor my gastroenterologist focused very much on it claiming it was because of inflammation and that it would hopefully heal once they figured out how to tackle the inflammation (which I hope Remicade will do successfully!).
My question is, what the heck do fistulas have to do with inflammation or pouchitis? And what do they have to do with itching?
as always; looking forward to hearing from another j poucher