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Reply to "Possibly Crohn's"

Crohn's is just a label for inflammation. I carry it as a diagnosis but have had a J Pouch for 28 years and will not be losing it any time soon and hopefully never. Instead of focusing on mere labels for inflammation, which frankly have little distinction between them in terms of the treatments actually used to treat the various labels we have for different forms of IBD, it's more productive to focus on getting proper treatment. The fact that you have a fistula is concerning, but my question to you is why are you not on biologics, and if you have not been tried on biologics, then discussion about going to an ileostomy is a vastly premature overreaction. You only mention 500 mg Cipro, which is a minor dosage for chronic pouchitis and it probably should have been combined with a dissimilar antibiotic to maximize coverage. But given your status now, biologics seems like the next step, not surgery. You should be tried on Remicade or Entyvio. Then see what happens.

Last edited by CTBarrister
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