Hi Sharon, thanks for your reply. Blake has multiple food allergies, it could be all the chemo, drugs and radiation, but atm he can only tolerate a special formula, he's also now been diagnosed with a bone infarct from the treatment, does seem never ending but he will receive all the treatment needed.
My daughter is taking him to his Allergist today, apparently there is a drug he could have so he can tolerate other foods, and its worked on other toddlers with multiple allergies, her GP refused to prescribe as 'too strong' so we'll see what happens
By the way I've followed your various adventures with the Koch pouch over the years, and have recently had to return to the Illeostomy after 25 years of a J pouch, unfortunately the Koch pouch is not really performed here, too many problems I was informed when I asked about it recently, mainly valve slippage, so stuck with the bag for the foreseeable future
Heather