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Reply to "Please have mercy on me & give me whatever advice you have!"

Hi! I had rectal cancer and FAP so total colectomy with rectum removed temp ileo and then takedown. tie been about 9 months since takedown and I think because of the radiation it has damaged my sphincter severely as well as here is only so little left that I am struggling with incontinence. I have severe skin breakdown due to it and am in pain ALL he time. I don't work on social security disability. I'm giving it until the end if the year to give time to heal but am thinking I will have to go back to the bag due to quality of life. I have become a hermit since takedown and am miserable, I want my life back. No havin an Ostomy is not all fun but I was able to function A LOT better with it. I know everyone's story is different and bodies are different. I am telling you this not to scare you but to say yes it is a possibility you will continue to leak afterwards. I wish someone talk to me who was in a similar situation. I am glad that if things don't work out that I did at least try life with a jpouch. So I would say talk to your surgeon/GI at length about this and maybe still give it a shot? I am 28 yrs old btw and still hope I have a lot more life to live with or without the bag.
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