This is my experience.
I had my initial surgery October 13 13
I was pretty well in and out of the hospital until the end of December. More in than out. I had two more surgeries. The second surgery they figured they may as well do the takedown... That was only after a month of having the ileostomy. So I was forced to use my pouch after only a month of healing. I had another surgery four days later for bleeding in my abdomen. I wanted to just die after that. Thank goodness I didn't. I lost 50 pounds in the process. I only started at 176. My normal weight. I have always been skinny. But losing 50 was too much.
Anyways. I leaked and pooped and leaked and pooped myself for months and thought it would never end. Never.
On top of that I was in extreme pain all the time. And to top that off I would go to bed and that resting would put my whole body in such pain I could not even lay there. I never got more than two to three hours of sleep for months. I had to get up for that or pooping myself. The pain lasted for months... I never ever thought I would get better. But slowly... Very very slowly I improved. I didn't even know or feel like I was improving... It was at a snails pace and the improvements were in such small increments it was not noticeable until I thought to myself that I am not having this or that anymore.
Well... It's been almost a year and I still have problems but they are no where near what they were. And I am happy with that because I know now that as time goes by I will get even better.
I don't know what else to say. It seems it took forever and time went by so slow and the pain... Pooping leaking and all that would never stop. But it has slowed to a very manageable pace. I still leak but it's only because of certain foods I eat. Trial and error on that. And like I said I still see improvements and I know it will get better.
I am so sorry you are in that position I was in... You sound just like what I went through.
The back pain.... Excruciating.... I don't even know where that came from. I have never had back problems. I am 58 by the way.
I feel for you but I cannot say it will get better... I can only say what I went thru. It was tough. And it sounds like what you are going thru is the same.
But be strong knowing that it will get better. I would only hope for the best for you.
I want to reach out to you but this is the only way I can.
Maybe knowing that someone was at there wits end and made it will help. I only hope it will.
My best to you.
Be strong.
Patience. That's the hard part cause you see no end to it.
I didn't.
But it does end.
Richard.