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Reply to "Personal Low Point. Help me understand!"

Ditto/ +1 on everything Scott F said. I am always on antibiotics. There is no waiting for the pouchitis to come back. I don’t wait to get sick. But in the past I did try to go off and use other treatments. Didn’t work. It’s like putting your hand on the hot stove and getting burned. You stop touching the hot stove because it burns. So I don’t go off antibiotics because I know what will happen if I do.

I should note that while the pouchitis doesn’t come back as long as I am on antibiotics, there is always inflammation in my Pouch. One of my GIs describes it as “simmering.” It’s been kept that way since 1995. That is a long time.

Last edited by CTBarrister
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