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Reply to "Personal Low Point. Help me understand!"

Fredrik posted:

CTBarrister; antibiotics since 1995! That is truly amazing... they should study you haha...

Back in 1995 when I embarked on this 23 year journey of chronic antibiotics, I asked my then gastroenterologist, probably the best J Pouch expert in New York City at the time, this question: “can I be on chronic antibiotics long term, for like the next 20 years?” 

His answer: “you’re the Guinea pig.” He went on to explain that because at that time treatment of chronic pouchitis was fairly new (Pouches started being done en masses in Mount Sinai Hospital in NYC in the late 1980s), there were no long term clinical studies. 

So it’s now 2018 and I am still taking antibiotics. But I have learned a few things about how to treat the Pouch beyond that- with diet, and how to manage side effects, one of them being yeast infections which I discussed in this thread. I developed my own protocol and it works for me.

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