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Reply to "Permanent Ostomy"

KR,

I just had an appointment with my surgeon to plan next steps if one last attempt to deal with my sinus tract doesn’t work. It is a very difficult decision. In many ways much harder then the original surgery as I’m not critically ill. The original surgery wasn’t really a choice. Now, I can still work full time, yada yada, so it feels like “should I just stick it out for one more procedure, and another?” Where does it end? You’re tough for putting up with it for so long. I’m only 14 months in and plotting an exit strategy. I will say, it helps that my surgeon is very supportive. He saw me at my healthiest with the end ileo so he knows what that looks like for me. Can you find a surgeon that may be a bit more supportive?

Caty,

Thanks so much for sharing. I’ve been agonizing over this and it’s helpful to hear the positive experiences.

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