Hello KR
I'm at a point after 33 yrs as a j poucher to go ahead and get as much info from surgeon at Cleveland clinic to get the facts on how removing the j pouch will be done. I just don't think I can keep on being a j poucher the struggles are exhausting me. Being a current breast cancer patient biologics are too risky right now for me. I was on entyvio for 2 yrs after my mastectomy but eventually body wasn't responding to it & pouchitis & 5 chronic bleeding ulcers on pouch are back along with severe rectal & anal pain. Nights are hard..I don't like to think about dinner hour because I know by 6 30 p.m. the rest of my evening & night will be in tge bathroom even while on immodium. Cramping & butt burns are intense. I'm going to be 62 so I am scared about more surgery. I've had 13 surgeries so I know how they can ho wrong too!! But I too am at a point of enough...33 yrs..but the last 10 yrs have been way too complicated. I wish you the very best. Praying for wisdom & the best surgeon that is available to you..& me if & when the time comes to make the decision to go to permanent ileostomy. God Blessings...
Fight like a girl