Reply to "Permanent Ileostomy to a K-Pouch or BCIR?"

kim-- dr dietz did my surgery when he was at cleveland clinic.  i was very pleased with him and my care there.  super ostomy nurses.  he is now at university hospital, also in cleveland.  i would highly recommend you get a consult from him to help line up the pros and cons.  i did and he was very helpful.  also, somewhere on this site i posted an article he had co-authored.  

i'm in boston and couldn't get a doc to do the surgery, much less encourage me.  one has since come around and has suggested the option to other patients.

at times i get frustrated with the k pouch, mostly over my food choices and a lingering hernia (i think that's what it is, going to doc soon.)   it takes more time out of my day, but that might be me and my habits--again my food choices, which tend towards thick output.  traveling in countries w squatter toilets adds extra challenges, but provides funny memories about them!  at the end of the day, so to speak, i come down on favoring the k over external bag. 

you can pm me if you have specific questions, but feel free to ask more on site.  i think the more info we have on the site the better off our community is.  keep us posted please,   

i too use an enema bottle when outside the house.  for those uncomfortable filling it up in public you could try filling a water bottle and then filling the enema bottle when in the stall.  once i worked out a routine for using a public bathroom the frustration went away.  as for washing out the catheter i figure nobody knows what it is used for and i've never been asked.  i also think that the more comfortable i am with what i'm doing then the less likely people will notice.

janet

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