Jan, I am so sorry to learn of all the problems you are having with your K pouch. I cannot imagine anyone in this group becoming mad at you for what you have posted. We are all here to support each other in good and difficult times. I am a strong believer in researching my options, especially when making a decision on a medical procedure that cannot be reversed. A person should weigh the advantages and risks for each option. I also believe in trying to make the best of a procedure that turned out to have problems, as I did for 30 years with a J pouch. Since everyone’s circumstances are different, there is no right answer, only the one that is best for you.
I am a strong advocate for the K pouch and BCIR procedures and am willing to accept the risk of getting complications that would require additional surgery or treatment. Not everyone is in that position or mindset. In the event that everything attempted to save my pouch failed, I know that I could always revert to an ileostomy. Many people have them with good results. I have read on other posts of people who have used a Foley catheter connected to a leg bag for certain pouch problems, but this would require a fairly liquid output. Have you considered it?