Reply to "Permanent Ileostomy to a K-Pouch or BCIR?"

jan--by public airing i mean on this site . it is good to bring up both improved quality of life issues, but also the probs w a k.  when eating out i just say i have a problematic gi system as to why i don't eat certain foods.  and i bite my tongue when friends, who know what i've gone through, complain about how lucky i am to eat butter when they can't eat this or that.  nobody understands until they have gone through something or when they have had chronic pain, and it's not possible to explain it.  anyway, enough on that....

sorry, but i live in boston!  so we'll stay in touch via cyber.  was yours at cc or university?

might your bloated belly be SIBO?  if so, that's treatable w diet, albeit a tough one.  i had it w the j, but not now.  i also irrigate w almost every evacuation to lessen the chance for overgrowth.  as for thick output a nurse suggested to use benefiber.  i tried it again yesterday, with a homemade veggie smoothie and i think it only marginally helped.  what works better is a 34 fr in which i've increased the hole size.  and of course, lots of irrigation.  can be frustrating and time consuming and i should be more careful w food......  i try.  j

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