J-
I really appreciate your honesty and willingness to share your negative experience! I know that not everyone has a positive experience with these and I welcome insight into the problems that can arise. I remember going into my j-pouch surgeries, I was optimistic, but knew that they did not work for everyone. Mind ended up causing tremendous problems and left me nearly 78 pounds before I had it removed for my permanent ileostomy. I don't regret trying, but I would be much further along in my recovery right now if I had not opted for it.
I do worry about similar problems arising with a k-pouch/ BCIR. My ileostomy is working wonderfully right now- I am just having trouble adjusting mentally and emotionally to it. I worry that I would be giving up something predictable for something unpredictable and potentially problematic. But knowing there is another option out there for me- I find it hard not to try.
Again, thank you so much for sharing your experience. Your experience highlights the not-so-successful side of these surgeries and that is something very important for me to consider. I hope you are doing well. -Kristen