j—I think it’s good to get as much information– – Good and bad – – about the k pouch on this site as we can tolerate writing.
you are right in saying there are some advantages to the eternal bag versus the k, primarily ease of empting and especially when away from home .
I had the extertal for a year, then the J pouch for many problematic years and the k pouch for the better part of three years. I’ve needed one hernia surgery and will probably face another in the near future. I’m not especially happy with some of my food limitations. That said I will fight to keep the k pouch. My quality of life is much better, but quality of life is indeed a personal choice.
Prior to making my decision I read every post on the K pouch Korner. probably read Sharon’s posts several times as she is extremely knowledgeable and detailed. I asked questions, members provided answers, I consulted with several doctors, read an excellent article which I posted on the site and felt that in the end I made an informed decision. You are young and this is very tough for you. I am so sorry. Whatever we can do to help out with information and support we will do. We are family. Keep us posted please.
BTW, where are you located? Janet