Reply to "permanent ileostomy problems--terrified to get the surgery"

egk

I also had ileostomy for 3 months before take down in 2010. I had so many problems with leaking. I had a few nurses trying all different type of bags. I even had the top ostomy nurse trying to help me get the right ostomy bag. Finally I called the company of the make of the ostomy bag. It took a few weeks for me to find the correct fit. The women that I spoke with was very helpful. She would send me supplies and explain how to use it. If that didn't work I would call her back and she would send something different and explain to me exactly what to do. If that didn't work I called her back. She was great. after awhile I had it down Pat. I really should have stayed with ileostomy bag. I really was doing very good with that. I am sure they have better ones now. Good luck to you it isn't as bad as you think. Grace

7/22/203:54 PM

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