Reply to "Permanent ileo for blockages"

Hi all,

a little update, at the last minute yesterday they cancelled my surgery because they think I’ve been misdiagnosed the past 18 months. I was always told I had bowel obstructions from adhesions, but the j pouch specialist that has finally got involved thinks it’s a functional problem with the pouch, I’m not sure what that means and have a follow up with her in her office, but they said they will likely take my pouch down. I’ll find out more when I see her. She also said I had widespread bowel immotility. Is this what happened to those of you with end ileo’s? Pouch disfunction? This has been such a frustrating journey, I wish they’d just fix this.

Last edited by duck11
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