Reply to "Permanent ileo for blockages"

Thanks all-laying here in hospital for the bizilliinth time with the Ng tube, I know deep down it’s the right call. I’ve had my pouch for 20 years and it’s just the past 18 months that have been fillled with all this chronic sickness. I don’t think it’s a gurantee to lose the pouch, but they said given how extensive the adhesions are I need to decide being ok with having a bag as that could be the outcome.  I have a beautiful little toddler at home and I can’t be the mom I want for him with all this going on and really want him to have a normal happy childhood, not spend it worrying about mommy who is always sick. It makes me hopeful to hear those of you who did this got your lives back as that is my only wish at this point-to get off the sick train and enjoy life.

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