My name is Stephanie, I had UC for 7 years before having my J Pouch surgeries 4 years ago. 1 year ago I had a pouch pexy performed at the Mayo Clinic because the pouch itself was actually twisting and flopping on itself causing pseudo obstructions, tremendous pain, risk of bowel necrosis, etc. Diagnosing this problem took 7 months and 4 separate visits to the Mayo Clinic. They did an open procedure "anchoring" down my pouch and cauterizing around it to hopefully create scar tissue to hold it in place. I am 10 months post op and now I'm feeling like I might have a partial obstruction higher up in my intestines. Eating solid foods causes extreme pain and vomiting, but liquids are ok, so I'm back to surviving on a liquid diet. I know from my past experience that the scheduled tests and images, mri enterographys, pouchogram, pouchoscopy, ct scans, xrays came back inconclusive since I would always have to fast prior to them and therefore wasn't symptomatic. Last time the only helpful images for a diagnosis came from going to the ER while symptomatic and getting images done. My GI is recommending an MRI Enterograph again, will this be helpful if it is a partial obstruction? Or should I just eat a big solid meal, wait for the pain and head to the ER? If so, which test is best to request for confirming or ruling out an obstruction. Is one more accurate for detecting strictures vs links or twists? Just tired of inconclusive tests and really want an answer so any advice is greatly appreciated. Thanks.
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