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Reply to "Pain clinic"

 I am in the exact same place as you are. I had my take down Oct 19 2016 and I have gotten cut off too. I wasn't taking massive amounts either. Maybe 15 -35 mgs of Oxycontin or hydro -codone a day to help out with the pain and misery of a constant  flow of lava and broken glass coming out of my bottom. Then off for a week then back on for a few days when a flare would come back. Real hit and miss process yet always terrified I would someday be without any pain meds. The detox each time  I came off of them was a bear also. What I have found out this week is  10 mgs of oxy a day does keep me off toilet 30 times a day. It brings it down to 10 times. I'm talking with my Dr. tomorrow about pain management or something.I have to have these narcotics in a small dose to function. I believe a doctor must refer you to the clinic.

 Dont let ANYONE beat you up about," You shouldn't still hurt" or "should be better by now" or what ever. They don't know what is what. Even the doctors don't understand this kind of pain. I've had my J- pouch now for 90 days and going to the bathroom 20-30 times a day re-injures it in alot of ways, and keeps it sore and tender inside and outside. The first year with a j-pouch is a big adjustment period. It's all a process but pain makes it take longer. Hang in there and I'm praying for you. Drew    

   P.S. Don't EVER throw your pain meds away. They are good long after the expiration date also. I did that at first when I didn't need them anymore. Big mistake. Our disease is very unpredictable and you may really need them and cant get any because the D.E.A. is threatening to take everything your doctor owns in a court battle because he was only trying to help you with prescriptions of relief.

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