GraceB,
You wrote: "I was going to Drs. on Long Island that was not really paying attention to all my symptoms and my complaining off all symptoms and weight loss."
Same here. I was going to a Dr in Westchester and he failed me big time. I was suffering in pain, crying in his office, all he could do was to prescribe me Zofran, and keep me on Lialda 4 pills a day. I got hospitalized the one day after a visit with him. Then came the surgery.
I was a very mild case of proctitis before that, and in one month with this GI, I progressed to pancolitis, because he kept me on 4 lialda a day until I needed surgery. No steroids, no biologics, nothing... I recommend every IBD patient to stay away from Drs that are not at tertiary centers. They have no idea about IBD, but they think they do.