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Reply to "Open surgery with Dr Remzi or Laparoscopic with Dr Greenstein for a new pouch"

GraceB,

You wrote: "I was going to Drs. on Long Island that was not  really paying attention to all my symptoms and my complaining off all symptoms and weight loss."

Same here. I was going to a Dr in Westchester and he failed me big time. I was suffering in pain, crying in his office, all he could do was to prescribe me Zofran, and keep me on Lialda 4 pills a day. I got hospitalized the one day after a visit with him. Then came the surgery.

I was a very mild case of proctitis before that, and in one month with this GI, I progressed to pancolitis, because he kept me on 4 lialda a day until I needed surgery. No steroids, no biologics, nothing... I recommend every IBD patient to stay away from Drs that are not at tertiary centers. They have no idea about IBD, but they think they do.

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