Carolyn,
i have similar issues with reaction to medicines. I have trouble preventing inflammation. I'm going into a clinical trial for Alicaforsen on 8/3. I need something for pouchitis. This is the only enema that is designed specifically for pouchitis . Also I have spent a lot of time working with ND's on my nutrition & supplements. I'm hoping eastern & western protocols keep me from the bowl. A month ago my small intestine perforated & I had 18 cm removed. I thought I had crohns but labs came back negative twice. I definitely think what we eat & drink control the pouch despite what surgeons say. My inflammation was so bad it traveled into my ankles & knees & was on crutches for 2 months. As soon as infected intestine was removed all inflammation left my lower extremities. The pouch worked great for about a week at home after surgery & now I'm back to 10-12 bm a day. I can't live on antibiotics so I'm trying everything else. But I will admit it is hard to be disaplined with food ,beverages & supplements.
Kim