JJA posted:My pouchitis was only controlled on antibiotics and Budesonide-whenever I tried to wean the budesinide pouchitis returned. I never tried immuran or 6MP or biologically because bios didn’t exist and 6MP was brand new and my colon was giving out on max prednisone and I had to have pouch surgery immediately, in 1991.
My GI offered immuran or immuran plus Humira or remicade. I opted for immuran only (plus rotating antibiotics) as a first step because I didn’t want to be hooked on biologics wondering if I truely needed them. Doc recommended the immuran/biologics combo but let me decide.
immiran (plus antibiotics) have worked like a charm for a good 5 years now, and I like that I still have biologics in my back pocket. I definitely need a good nights sleep-my body prefers a full 8 hours, but I figure that’s good for me anyway. I push through some fatigue but Inattribute that more to a busy full time job, kids, you know-busy working mom stuff.
long way of saying Immiran has been my solution for many years now!
Good luck with your decision and your insurance company!
So glad you have a good response to treatment. It's things like this that make me doubt if I should skip Imuran and go straight to biologics. What did your scopes look like prior to and after Imuran treatment? Did you/do you have ulcers and chronic inflammation?